Harrison’s Fund is a charity determined to find a cure for Duchenne Muscular Dystrophy, of which we are proud partners. We are making time to spread the word and help raise funds for this important cause.
Here are few words from Alex Smith, founder of Harrison’s Fund and Harrison’s father.
Harrison’s Fund is a charity named after our eldest son; a cheeky and determined young man. Harrison is now in year 8 at school, enjoys computer games and cooking and winding up his little brother William. He is creative and has a great sense of humour. He also has Duchenne Muscular Dystrophy.
What is Duchenne?
Duchenne is a fatal muscle-wasting condition that is currently taking Harrison’s strength at an alarming rate. He now uses a wheelchair full time and we are determined to do all we can to find treatments, not just for Harrison, but for all those with Duchenne, to slow the progression of this condition.
Harrison was diagnosed in January 2011, a day that we will never forget – one blood test changed everything.
Numb, we had to start down a path we never dreamt we would have to follow. We had to take those first steps that no one is ever taught. Our immediate thoughts, like all parents in this position, were to secure the best possible care for Harrison, and we are lucky to be close enough to the fabulous teams at Great Ormond Street Hospital.